ACFCQ/Information Section/
Updated: February 1st, 2010
Winter


On behalf of the directors of the Adult Cystic Fibrosis Committee of Quebec, it gives me great pleasure to introduce the revamped version of the ACFCQ Web site. Although it was developed to meet the specific needs of adults with cystic fibrosis (CF) in Quebec, we hope that the site becomes a source of information and inspiration to people around the world who are concerned with the psychosocial and medical realities of adults with CF.
  

Welcome all!
Laval de Launière, Director General


News

Facts on cystic fibrosis and diabetes
... ... According to the Canadian Cystic Fibrosis Foundation, diabetes is a frequent complication of cystic fibrosis. ... (In French only)

The right to convert group insurance: a must for people who are difficult to insure!
... There is a clause in insurance policies allowing people to convert their group life insurance to individual life insurance: the conversion right. Thanks to this right, employees can exercise this right when they stop working or when the policy is terminated. ... (In French only)

Scholarships from the Fondation l'air d'aller
The Fondation l'air d'aller has announced a new scholarship nomination period. Get your forms now!

Christmas baskets
... No matter where you live in Quebec, the ACFCQ is offering to help adults with cystic fibrosis who are having financial problems and would like to receive a Christmas basket. ...(In French only)

A new breath in the west: testimonial film
... In late June 2009, six adults with cystic fibrosis from France, Belgium, Italy and Canada, all of whom have had lung transplants, took part in an eight-day hike in the Burren area. ...(In French only)

Winners of the Optimum Énergie Cardio memberships
... Congratulations to the seven winners of three-month Optimum Énergie Cardio memberships. ... (In French only)

The Canadian Cystic Fibrosis Foundation's awareness campaign
Watch and listen to the awareness campaign.
SVB

Click here
SVB #34
The 2010 edition of SVB is now available.

Message From the Editor
Illness, Poverty and Social Exclusion: the Silent Scourge
A Word From the Chair
For You . . . with You
Letters to the Editor
Forceful, but Necessary Messages
A Message of Hope That the “Drowning” Will Stop
When Advertising Hurts
Morbid Ads That Take Our Breath Away
Interview
Sleep and Sleep Disorders
Reflections
Everything Starts with Your Inner Self
Now That We’ve Grown up
Health
The Intestines, an Important Organ
Physiotherapy
The Importance of Physical Activity in End-Stage Cystic Fibrosis
Psychology
Breaking Bad News
Hemoptysis – Coping with the Stress
Research
Cystic Fibrosis Research: Bringing Water to the Mill
Health Column
- Diabeta
- Antibiotics and the Immune Systems
- Salt and Hypertension
- Enzymes and Calcium
- Animals and Allergies
CPAFK Express

Click here
CPAFK Express 33



The fall issue (September 2009) of CPAFK Express is now available..

This issue features information on diabetes, genealogy, the conversion of group insurance, Christmas baskets, Fondation l'air d'aller scholarship recipients, the Marc-Fortin scholarship recipient, winners of Optimum Énergie Cardio memberships, the Michel-Paquette Award, TVs for patients in the Laval Hospital, a movie and literary awards.

Grippe A (H1N1)

Click here
CPAFK Express 30



Over the past few weeks, many adults with cystic fibrosis in Quebec have asked the Adult CF Committee of Quebec (ACFCQ) for information on influenza A (H1N1). We collected the questions and submitted them to internationally known infectious disease specialist and microbiologist Dr. Cécile Tremblay, who is also the Director of University of Montreal’s UHRESS (Unité hospitalière de recherche, d'enseignement et de soins sur le sida), asking if she would help adults with cystic fibrosis in Quebec and their caregivers understand the issues related to influenza A (H1N1). We would like to thank Dr. Tremblay on behalf of the ACFCQ for having generously agreed to our request. We would like to specify that this document was produced on October 14, 2009.
Discussion forum

If you have any questions, concerns or thoughts about cystic fibrosis and would like to share them with adults in the same situation, remember there’s strength in numbers.
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The discussion forum is for everyone who is directly or indirectly affected by cystic fibrosis. Our ever growing membership is a sure sign that this forum meets a very real need.

In addition, the forum is user-friendly, making it accessible to all.

You can access it by clicking on the “Forum” link at the top of the page or on the following link: http://www.cpafk.royaume.com

Please note that the discussion forum is available in French only.

Poster (Socio-economic profile)

In 2003, the Adult Cystic Fibrosis Committee of Quebec conducted a study to map out the socio-economic profile of the adult cystic fibrosis population of Quebec.

You can view some of the study’s findings on the poster presented at the 27th European Cystic Fibrosis Conference held in Birmingham, UK, in 2004. Click here.
Fall Schedule

We can be reached every day of the week.
The ACFCQ offices are open Monday to Friday, 9:00 a.m. to 5:00 p.m.

You may leave a message in the ACFCQ voice mailbox:
514 288-3157 (Greater Montreal Area)
1 800 315-3157 (elsewhere in Quebec)

or send us an e-mail: cpafk@videotron.ca

Change of address

If you are moving, please call and let us know :
514 288-3157 (Greater Montreal Area)
or 1 800 315-3157 (elsewhere in Quebec, toll-free).

or send your new adress to:
ACFCQ
629 Prince Arthur Street West
Montreal, Quebec
H2X 1T9
E-mail: cpafk@videotron.ca


We welcome your comments, so feel free to send them to us.

 

Information | Communication | Organization | Site Map | French

To contact the ACFCQ: cpafk@videotron.ca
Send your comments on the site to: aline_cpafk@yahoo.ca