| ACFCQ/Communication Section/ Updated: October 23th, 2007 |
|
Cystic Fibrosis
French Association for the Fight Against Mucoviscidosis
www.vaincrelamuco.org
Official site of the French Association for the Fight against Mucoviscidosis. Information about the organization. In French only.
Belgian Association for the Fight Against Mucoviscidosis-AFLM
www.muco.be
Site of the Belgian Association for the Fight against Mucoviscidosis. Information about the disease, as well as links to other sites. In French only.
Quebec Cystic Fibrosis Association - QCFA
www.aqfk.qc.ca
Official site of the Quebec Cystic Fibrosis Association. In French only.
Canadian Cystic Fibrosis Foundation - CCFF
www.cysticfibrosis.ca
Canadian Cystic Fibrosis Foundation site. Information about the disease, research, resources, etc.
In English and French.
Cysticfibrosis.com
It's the 10 year anniversary of CysticFibrosis.com, an American cystic fibrosis Web site. If you are interested in clinical practises in the United States and in Canada's English-speaking provinces, feel free to visit the discussion forum: http://forums.cysticfibrosis.com
You may also create your own cystic-fibrosis-related blog at the following address: www.cysticfibrosis.com/blogs.cfm
Forum linked to the Association ActionMuco
http://actionmuco.aceboard.fr
Friendly gathering spot for persons with cystic fibrosis and their families and sympathizers.
English section available.
Fondation l'air d'aller
www.fondationlairdaller.org
Organization for persons with cystic fibrosis aimed at improving their quality of life by offering physical, psychological and financial assistance.
In French only.
Cystic Fibrosis Foundation.
www.cff.org
American Cystic Fibrosis Foundation site.
CF-WEB.
Online Information about Cystic Fibrosis.
www.cystic-l.com
American site. Support and discussion groups, information, links to other sites.
Guide on Cystic Fibrosis
www.cfeducation.ca
This site is sponsored by Roche and is prepared by health professionals, including nurses, a nutritionist and a physiotherapist. It contains information about the disease, the respiratory system and the digestive tract. A special section called "Vivre avec la FK" [living with cystic fibrosis] provides all types of complementary information.
In English and French.
MucoDreams
www.mucodreams.com
Blog and forum of the Association française Étoiles de neiges. This association supports young people with cystic fibrosis through sports, getaways and meetings with champions. In French only.
Valérie's Blog
http://valerie.gosselin.over-blog.com/
She talks about her experience with cystic fibrosis and the philosophy of life that she is trying to adopt in order to live with the disease more easily. She is a psychologist and a member of the Ordre des psychologues du Québec, and offers on-line consultations. In French only.
MuCoBloG
http://mucoblog.free.fr
This blog is managed by Cyrielle, who is 18 years old and has cystic fibrosis. She calls it mucoviscidosis because she lives in Europe and that is the term used there. The site contains information about the disease, as well as links, addresses, personal photos, quotes, glimpses of other people with cystic fibrosis and her friends, and much more.
In French only.
La mucoviscidose, un combat de tous les jours
http://lamucoviscidose.over-blog.com
This blog was created by a 29-year-old adult who was diagnosed later in his life with cystic fibrosis.
In French only.
Fibrose Kystique (Mucoviscidose)
www3.nbnet.nb.ca/normap/CF.htm
Personal Web site designed by Norma Plourde, an adult with cystic fibrosis.
This bilingual site contains a wealth of information about cystic fibrosis.
In English and French.
Mucoviscidose-Innovation
www.mucoviscidose-innovation.org
Association whose goal is the development and validation of scientific apparatus, devices and treatments for improving the health and quality of life of persons with cystic fibrosis. In French only.
Transplantation
Canadian Organ Donors Association (CODA)
www.acdo.ca
The main mission of this association is to ensure emergency transportation of organs for transplantation, with the support of various police forces. Every year CODA organizes a special ceremony to give thanks and pay tribute to the families of donors and to live donors.
In English and French.
Canadian Council for Donation and Transplantation
www.ccdt.ca
The mission of this council is to coordinate and enhance the development of Canada’s OTDT community by working collaboratively to improve the collective performance of the system for donors, recipients, and their families.
Canadian Association of Transplantation
www.transplant.ca
Health Canada
A Coordinated and Comprehensive Donation and Transplantation Strategy for Canada
Quebec Transplant
www.quebec-transplant.qc.ca
Quebec-Transplant is the official organization mandated by the Health and Social Services Ministry to ensure the coordination of organ donation in Quebec. Its mission is to coordinate and facilitate all activities related to the identification of the potential donors, the attribution and the procurement of human organs in order to contribute to the continuous improvement of the quality of services offered to the people in need of organ transplantation. Statistics available. In English and French.
Click on www.signez.ca, which was designed to raise public awareness about organ donation. In French only.
La Fondation Diane Hébert
http://macten.net/fdh
This foundation helps people go through the waiting period and the post-transplant period and helps increase the number of potential donors by organizing regional and provincial awareness campaigns.
In English and French.
La Maison des greffés du Québec
www.maisondesgreffes.com
Established by Lyna Cyr, the Maison des greffés du Québec is a residence for persons living outside the Montreal area who have had a transplant or who are waiting for an organ.
In French only.
Fais le don!
http://faisledon.blogspot.com
Blog by Jean-Éric Ouellet, who received a double lung transplant in 2004 and is a member of the Adult Cystic Fibrosis Committee of Quebec (ACFCQ), representing Quebec adults with cystic fibrosis who have received a transplant or are awaiting a transplant. The purpose of this blog is to inform people about organ donation and encourage them to donate. In French only.
Organizations
Confédération des organismes de personnes handicapées du Québec (COPHAN)
www.cophan.org
A non-profit organization dedicated to defending the rights and promoting the interests of persons of all ages with functional limitations. In French only.
Commercial links
Dymedso
www.dymedso.com
Information about the Frequencer, a new respiratory physiotherapy device.
Ovo
http://www.cliniqueovo.com/english/index.asp
Fertility clinic.
BlueSkin
http://www.blueskin.ca/english/index.html
Anti-bacterial gel dispenser.
VitalAire
www.vitalaire.com
Home oxygen and aerosol therapy.
French Association for the Fight Against Mucoviscidosis
www.vaincrelamuco.org
Official site of the French Association for the Fight against Mucoviscidosis. Information about the organization. In French only.
Belgian Association for the Fight Against Mucoviscidosis-AFLM
www.muco.be
Site of the Belgian Association for the Fight against Mucoviscidosis. Information about the disease, as well as links to other sites. In French only.
Quebec Cystic Fibrosis Association - QCFA
www.aqfk.qc.ca
Official site of the Quebec Cystic Fibrosis Association. In French only.
Canadian Cystic Fibrosis Foundation - CCFF
www.cysticfibrosis.ca
Canadian Cystic Fibrosis Foundation site. Information about the disease, research, resources, etc.
In English and French.
Cysticfibrosis.com
It's the 10 year anniversary of CysticFibrosis.com, an American cystic fibrosis Web site. If you are interested in clinical practises in the United States and in Canada's English-speaking provinces, feel free to visit the discussion forum: http://forums.cysticfibrosis.com
You may also create your own cystic-fibrosis-related blog at the following address: www.cysticfibrosis.com/blogs.cfm
Forum linked to the Association ActionMuco
http://actionmuco.aceboard.fr
Friendly gathering spot for persons with cystic fibrosis and their families and sympathizers.
English section available.
Fondation l'air d'aller
www.fondationlairdaller.org
Organization for persons with cystic fibrosis aimed at improving their quality of life by offering physical, psychological and financial assistance.
In French only.
Cystic Fibrosis Foundation.
www.cff.org
American Cystic Fibrosis Foundation site.
CF-WEB.
Online Information about Cystic Fibrosis.
www.cystic-l.com
American site. Support and discussion groups, information, links to other sites.
Guide on Cystic Fibrosis
www.cfeducation.ca
This site is sponsored by Roche and is prepared by health professionals, including nurses, a nutritionist and a physiotherapist. It contains information about the disease, the respiratory system and the digestive tract. A special section called "Vivre avec la FK" [living with cystic fibrosis] provides all types of complementary information.
In English and French.
MucoDreams
www.mucodreams.com
Blog and forum of the Association française Étoiles de neiges. This association supports young people with cystic fibrosis through sports, getaways and meetings with champions. In French only.
Valérie's Blog
http://valerie.gosselin.over-blog.com/
She talks about her experience with cystic fibrosis and the philosophy of life that she is trying to adopt in order to live with the disease more easily. She is a psychologist and a member of the Ordre des psychologues du Québec, and offers on-line consultations. In French only.
MuCoBloG
http://mucoblog.free.fr
This blog is managed by Cyrielle, who is 18 years old and has cystic fibrosis. She calls it mucoviscidosis because she lives in Europe and that is the term used there. The site contains information about the disease, as well as links, addresses, personal photos, quotes, glimpses of other people with cystic fibrosis and her friends, and much more.
In French only.
La mucoviscidose, un combat de tous les jours
http://lamucoviscidose.over-blog.com
This blog was created by a 29-year-old adult who was diagnosed later in his life with cystic fibrosis.
In French only.
Fibrose Kystique (Mucoviscidose)
www3.nbnet.nb.ca/normap/CF.htm
Personal Web site designed by Norma Plourde, an adult with cystic fibrosis.
This bilingual site contains a wealth of information about cystic fibrosis.
In English and French.
Mucoviscidose-Innovation
www.mucoviscidose-innovation.org
Association whose goal is the development and validation of scientific apparatus, devices and treatments for improving the health and quality of life of persons with cystic fibrosis. In French only.
Transplantation
Canadian Organ Donors Association (CODA)
www.acdo.ca
The main mission of this association is to ensure emergency transportation of organs for transplantation, with the support of various police forces. Every year CODA organizes a special ceremony to give thanks and pay tribute to the families of donors and to live donors.
In English and French.
Canadian Council for Donation and Transplantation
www.ccdt.ca
The mission of this council is to coordinate and enhance the development of Canada’s OTDT community by working collaboratively to improve the collective performance of the system for donors, recipients, and their families.
Canadian Association of Transplantation
www.transplant.ca
Health Canada
A Coordinated and Comprehensive Donation and Transplantation Strategy for Canada
Quebec Transplant
www.quebec-transplant.qc.ca
Quebec-Transplant is the official organization mandated by the Health and Social Services Ministry to ensure the coordination of organ donation in Quebec. Its mission is to coordinate and facilitate all activities related to the identification of the potential donors, the attribution and the procurement of human organs in order to contribute to the continuous improvement of the quality of services offered to the people in need of organ transplantation. Statistics available. In English and French.
Click on www.signez.ca, which was designed to raise public awareness about organ donation. In French only.
La Fondation Diane Hébert
http://macten.net/fdh
This foundation helps people go through the waiting period and the post-transplant period and helps increase the number of potential donors by organizing regional and provincial awareness campaigns.
In English and French.
La Maison des greffés du Québec
www.maisondesgreffes.com
Established by Lyna Cyr, the Maison des greffés du Québec is a residence for persons living outside the Montreal area who have had a transplant or who are waiting for an organ.
In French only.
Fais le don!
http://faisledon.blogspot.com
Blog by Jean-Éric Ouellet, who received a double lung transplant in 2004 and is a member of the Adult Cystic Fibrosis Committee of Quebec (ACFCQ), representing Quebec adults with cystic fibrosis who have received a transplant or are awaiting a transplant. The purpose of this blog is to inform people about organ donation and encourage them to donate. In French only.
Organizations
Confédération des organismes de personnes handicapées du Québec (COPHAN)
www.cophan.org
A non-profit organization dedicated to defending the rights and promoting the interests of persons of all ages with functional limitations. In French only.
Commercial links
Dymedso
www.dymedso.com
Information about the Frequencer, a new respiratory physiotherapy device.
Ovo
http://www.cliniqueovo.com/english/index.asp
Fertility clinic.
BlueSkin
http://www.blueskin.ca/english/index.html
Anti-bacterial gel dispenser.
VitalAire
www.vitalaire.com
Home oxygen and aerosol therapy.
Other sites
Legal Aidwww.avocat.qc.ca
Drug Insurance
www.ramq.gouv.qc.ca/en/citoyens/assurancemedicaments
Quebec CLSC
www.aqesss.qc.ca
In French only.
Office des personnes handicapées du Québec - OPHQ
www.ophq.gouv.qc.ca
In French only.
Revenue Canada - Information for persons with disabilities
www.cra-arc.gc.ca/tax/individuals/segments/disabilities
Régie de l'Assurance maladie du Québec
www.ramq.gouv.qc.ca
Quebec Pension Board
www.rrq.gouv.qc.ca
Income Security
www.mess.gouv.qc.ca
Loans and Bursaries
www.afe.gouv.qc.ca
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